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Youth With A Condition

by Kyle West



You Got a Friend in Me Print E-mail

                  Happy Thanksgiving everybody! I hope everyone is enjoying a blessed time with family and friends. Before I slip completely into a turkey-induced coma, I thought now might be a good time to offer a few thoughts on something that I’ve been reflecting on lately, particularly during this time of special focus on God’s blessings.

                  We all know that at this time of year we’re often expected to talk about things we’re uniquely thankful for. Often, this can seem a little bit trite, especially since there are so many things we take for granted from day to day. This year, however, the more I think about it, the more I can honestly say that lately, I’ve come to appreciate the gift of close friendship in a new way. Being 2000 miles away from home at college, it’s difficult to make it back to Colorado over a five-day break. This is the second year that my old roommate and good friend Caleb Sasser has invited me down to North Carolina to spend the holiday with his family. It’s a blessing to be invited to spend Thanksgiving in someone’s home, especially when they don’t necessarily have to take you! Don’t get me wrong, I miss my own family, but I enjoy experiencing friends’ hospitality. I don’t mind the annual exposure to Southern culture (and generous Southern cooking,) too much either!

                  All this makes me wonder, how often do we take close friends for granted? Even more importantly, how often do we miss opportunities to cultivate these kinds of friendships? I’ll be honest, I am not the most effective at investing in people. Some people I know seem able to care so deeply about almost everyone they meet. They form deep and lasting bonds with anyone almost instantly. That is not me. It’s not that I’m indifferent towards people, but I tend to have a lot of acquaintances, with a much, much smaller circle of deep and abiding friendships. I suppose the best way to describe it is that, even though I will interact with and like a lot of people, someone has to earn my trust and respect in a unique way before I will allow a friendship to grow far below the surface. Even this isn’t a perfect way of describing it, (there are people whom I respect greatly that I’m not necessarily close to,) but it’s the best way I can think of.

                  Obviously, some of this is dependent on a person’s unique personality type. There are, however, a couple of things that I believe can consciously affect the friendships we form. The first of these is simply our willingness to make sacrifices for the sake of other people. This is an area in which I’ve been asking the Lord to help me grow for some time. Friendship, we all ought to recognize, is a two-way street. It takes effort, inconvenience, and difficulty to cultivate relationships. We can’t expect to simply take from others without giving; indeed, God commands us to give before expecting to receive. Basically, we need to learn to love more. I feel that I especially need continued growth here, but weaning us off of our own self-centeredness is one of the key aspects of God’s work in all of our lives.

There is another side to this process, however, that I think is especially important for those with disabilities. Friendship requires vulnerability, and it can be especially hard for the disabled and their families to make themselves vulnerable. Believe me, I know; as someone with CP, I’m aware that I’m already in a visibly vulnerable position. Too often, I struggle with the fear of being thought of as weak. I want to prove to others that I can handle just as much or more than they can. I want to be just as competent or more than they are. I want to command their respect, instead of depending on their help. To an extent, at least, some of this seems good, and to be sure a desire for independence channeled rightly is very healthy. The problem, though, occurs when a person’s motivation becomes much more about vanity and pride. An insistence on being “just as good or better” than everyone else isn’t exactly helpful when it comes to being honest about our sins and human failings. Furthermore, it refuses to acknowledge the fact that when we look beyond the outside, every single human being is just as broken as anyone else. Just because we have greater external difficulties doesn’t change the fact that every one of us is a spiritual wreck apart from God’s mercy and strength. Without Him, our sinful, empty hearts would all be trapped in the same hopeless quicksand. We all need God, and when we acknowledge this, we are able to be open about it with one another. A true friend is one who sees all the messiness and weakness in us and is willing to love us anyway. “We love because he first loved us,” and so we help one another press on toward the goal.

So, my encouragement to you this Thanksgiving is to be willing to be vulnerable. Be thankful for those who, in spite of everything, love you because God loves you. Realize that everyone, physically “normal” or not, is in need of that same love and help. And, in thankfulness for the love and help God gives you, be willing to extend it to others. Out of love, be one more blessing for your friends to be thankful for.

 
Taking the Leap Print E-mail

Truth be told, I’ve never really liked the expression “leap of faith.” It implies that, when we take some risk in order to follow God, we leap without any idea what or Whom we’re leaping to. We think we have some idea of where God is calling us, but we’re incredibly afraid to go there. So we shut our eyes and jump feet first down a deep dark hole of uncertainty. We know we’re supposed to expect God to catch us, but for some reason we have no rational confidence in that expectation. Somehow, this reasoned, certain confidence in God’s strength is thought to be opposed to true “faith.” Our culture, even our Christian subculture, believes that faith is fundamentally irrational. Only if we have no real assurance of God’s provision can a bold step to follow Him be considered a leap of true “faith.” We’re almost expected to be surprised by God’s support when He finally meets our needs.

                  The sad thing is, this understanding of faith has the potential to paralyze a lot of people. We just don’t think we have the strength to let go with that kind of trust. We ask ourselves things like, “With all the sin I struggle with, how can I expect God to use me here?” or “I’ve already got so many responsibilities, how can I manage to take on something new?” I think we find ourselves in these mindsets because we forget that a “leap of faith” is not something we do for its own sake. Instead, we place our faith in Someone who has already proven Himself faithful.

                  In my last few posts, I’ve talked a lot about learning to rely on God. I’ve had to wrestle with a lot of new challenges lately, and some of my own weaknesses have become a lot more apparent. The more I recognize my weaknesses, though, the more I simply have to rely on God’s strength. “Apart from me, you can do nothing,” Jesus said. The more I’ve become aware of my own inadequacy, the more true this has rung for me. The “name of the game” isn’t so much cultivating my own ability as learning to rely on God.

                  The problem, though, is that this can sound exactly like the abstract “leap of faith” mentioned earlier. What does reliance on God’s proven faithfulness look like? Often, I think it looks like willingness to take risks. This isn’t for the sake of demonstrating our “blind faith” to God; rather, it’s a genuine belief that, since God has always cared for us in the past, he will continue to care for us, even when we take what the world considers “big risks” for Him. I know for a fact this can be especially challenging for people with disabilities and their families. Growing up, I was not a big risk-taker, especially when it came to pushing the boundaries of my physical condition. I knew what was too risky, what I shouldn’t dare to attempt for fear of getting hurt. To the ire of Jon, my physical therapist of ten years, this often included things as silly as walking across grass or opening doors for myself (Only in the early days though, I swear. J) As I’ve gotten older, though, I still struggle with fear in many ways, over things that are a little bit more serious than making it across the lawn. For a lot of families, though, the fear of letting go to some degree, of pushing the boundaries, is much greater. Whatever that next step is for your loved one with a disability, letting go long enough to let them take it can be terrifying. “What degree of success can we expect? Will someone get hurt? How do we know we’re ready for this?” The next step might range from greater independence in new activities of daily living to going off to college. Regardless, these same questions can run through our minds.

                  It’s at these moments that we need to remember the God we’re called to have faith in. In the Old Testament, God’s people were never expected to operate on the basis of “blind faith.” Over and over again, we see Israel setting up remembrances, memorial stones, and reminders of God’s mighty acts. These mighty acts gave Israel evidence that called for faith; that is, for unwavering confidence in the trustworthiness of God’s promises. This was the God who parted the Red Sea; this was the God who toppled the walls of Jericho; this was the God who saved the nation every time the people were forced to run to the hills. Therefore, God could be trusted to care for His children in the day to day challenges they faced. Israel’s faith wasn’t a blind leap; it was confidence in something they should have known to be a fact.

                          My question then is, hasn’t God done the same thing for us? Yes, the challenges we face are difficult. Yes, letting go and taking risks is scary. No, God hasn’t promised us that His plan doesn’t include a process where we fall on our face a few times. But, in all the little things we have come through, in all the impossible situations we’ve survived, all the mountains we’ve climbed, hasn’t God been with us? The fascinating thing is, ultimately those with disabilities are really no weaker than any other human being. All human strength is inadequate even for getting through this life. But God’s strength dwarfs all human strength by comparison, and everyone needs it. A leap of faith is not a leap into the dark; it’s a leap into the net of God’s grace, which we have every evidence will be waiting to catch us.   

 
Wait Upon the Lord Print E-mail

I’ll be honest; if there’s one thing I can’t stand its waiting. Ask my family and they’ll be sure to tell you; whether it’s waiting for the beginning of the next exciting chapter in my life, waiting to get out of casts after surgery, waiting for a long-anticipated new book or movie to come out, right down to waiting for ice cream after dinner, patience is NOT one of my strong suits.  (Incidentally, this is why I’ve always been so fond of being allowed to cut to the front of every line at amusement parks. Even CP has its perks. J) Given my usual attitude towards waiting, I’ve had a difficult time coming to grips with a lesson I feel God has been teaching me lately. I feel like this is a season of “wait upon the Lord.”

It’s both easy and common to acknowledge intellectually that “God works on his timetable, not ours.” This is an article of faith that seems to be repeated often in evangelical circles, one of those statements that we unfortunately affirm in order to sound like “good Christians.” Yet, even though we will outwardly say what needs to be said in order to keep up our “good Christian” image, truly accepting this statement is much more difficult. Of course, we can understand if God doesn’t always give us everything we want immediately. The emotional rollercoaster of a season of waiting often leaves us asking, however, “Couldn’t He be just a little bit early?”

It’s nerve wracking.  We find ourselves filled with a profound desire, even a desperate need, for something we know God could give us. In my last post, “Trust Issues,” I talked about the uncertainty I felt as I grappled with some of these unfulfilled desires in my life. Perhaps it’s a desire to find the special companionship of the one God made for you. Perhaps it’s the need to find a job in the face of financial uncertainty. Whatever blessing it is we await, we imagine that if we had it sooner rather than later, the comfort and security would make life so much easier. Yet God doesn’t promise us perpetual earthly comfort and security. He promises to give us what we need, exactly when we need it. Our comfort and security is to come from the fact that we are under the loving care of a sovereign God. Everything He does is for our good, but that means it isn’t always immediate.

 Still, this can be very frustrating. It’s hard to understand why it seems that everything we ask for has to be accompanied by some sort of test. Why can’t God just let things fall into our laps easily and quickly once in a while? Trust me, this is a question I’ve been dealing with lately. This has been a time of transition for us, as Dad has been looking for a new job and seeking to invest more time in Need Project. Why couldn’t the solutions just happen, I wondered, without all the worrying and praying and “11th hour” acts of provision? This has got to be something that’s just as prevalent in the lives of others with disabilities; we wait on diagnoses, improvements, and life milestones from the day we’re born, and some of us have to wonder, why all the suspense? Can’t God just “make it happen?”

These are questions I’m still wrestling with, but the more I wrestle the more I’ve come to a realization. I can’t always comprehend God, but the fact is, He’s good. He knows exactly when to bring blessings into my life (and this was my greatest realization,) not so that they’ll happen most quickly or be most convenient, but so that they’ll be the richest blessings. When we are forced to “wait upon the Lord,” we experience the most growth and dependence on Him. Not only that, but waiting prepares our hearts to receive blessing. We taste God’s goodness with a heart that has been refined by fire for the task, and long-awaited blessings are even sweeter in the tasting. So God’s timing is as much about making his blessings as sweet as possible as it is about testing and growing his children. The Bible says, “I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future.” Those plans might involve waiting, but that waiting makes possible the fullness of God’s goodness. His riches are incomparable, his goodness inexhaustible, even while we wait.

 
Trust Issues Print E-mail

Happy summer everybody! It’s good to be back on the blog once again, and to be back at home with my family over break. It’s difficult to realize how much your college experience becomes like another, almost completely separate life; that is, until you come home and realize how much time you have on your hands! Given that I’ve had a chance to put down the books and lay all the papers to rest for a while, it seemed like high time I should write again. It definitely feels good to have time to write for pleasure!

I’ve been thinking about a paradox that seems very prevalent at this time in my life. On the one hand, these are probably some of my most exciting years. I’m thoroughly enjoying college, expanding my mind and heart in new directions, deepening my relationship with God, and meeting all kinds of new people. This is a time very oriented towards the future, and filled with great promise. In one sense, “the sky’s the limit” as far as where God could call me. It’s also, however, a time of great uncertainty, which is why I’ve been wrestling with the issue of trusting God.

You would think, after having gone through all the surgeries, therapies, the physical as well as the emotional trials of living with cerebral palsy, trusting in God would come pretty naturally to me. After all, He’s brought me through many things most people would never have to deal with. But there are pitfalls and dangers here, too. In my situation, I think it becomes easy to trust God in the midst of extraordinary things like these. I’ve spent my whole life learning that God will enable me to overcome the more obvious obstacles associated with my disability. When it comes to more normal, everyday trials, trusting in God can become just as difficult for me as for anyone else. It is these normal, “common to man” trials and uncertainties that are looming large in my view right now, and sometimes living with a disability can make their temptations all the more insidious.

I don’t know with certainty whether I’ll be able to find a good job after I graduate. I don’t know with certainty what God has planned for my brother and sister, now that their both getting closer and closer to graduating high school and moving on to independent lives of their own. I don’t know whether my Dad’s ministry will take off the way we are praying it will. But I think the clearest illustration of my struggles with trust involve the issue of dating/courtship.

Away at college at the age of 19, friends’ entering into serious relationships is an in-your-face issue. Granted we’re still young, but fewer and fewer have not been in some kind of relationship. Especially at a Christian college, where the courtship ideal has become so influential, many are beginning to think seriously about marriage, even if it’s still several years in the future. Over these last two semesters I even witnessed a few “bobtisms,” our school’s ritual of dunking newly engaged men in the campus lake. Regardless of our own situations, this is an issue we simply have to deal with.

Enter my struggles with uncertainty. The fact is, especially given my disability, I struggle with not knowing God’s plan for me regarding the minefield of romantic relationships. I’m a young man like all other young men, with the same God given hopes and desires. But, like others, I also deal with fear and doubt, too often exacerbated by my CP. As Christian men, we’ve had it impressed upon us that good-hearted, God honoring young ladies want a knight in shining armor. They want a man who will serve as their protector, provider, and leader. I often wonder, given my physical challenges, how I will ever be able to fill these roles. As I once told a friend, I wouldn’t exactly be able to wrestle a bear into submission if my wife and I were attacked in the woods. I will probably need more physical help from my future wife than she will ever need from me. Faced with these realities, I often wonder what God expects “masculinity” to look like from someone in my situation.

Important issues like these often command a lot of my focus. They also leave me struggling with a lot of fear. But it is exactly this narrow perspective that the Enemy wants to trap me in. These situations present challenges, but are they really more terrible than the challenges God has already brought me through. My very survival on this Earth is a miracle. God has preserved my life against the odds from the day I was born two months premature. Is it really even rational to assume he won’t bring me through these challenges as well. I don’t have all the answers, nor do I see all of God’s plan. But if the Bible says “I can do ALL things through Christ who strengthens me,” doesn’t that include the common, everyday things? God’s ways are not my ways, and His plan may look entirely different from what I expect. He, however, has good plans for me. Whatever they are, they are better than I can imagine. He will give me the strength to finish the race.  

 
What is Enough? Print E-mail

Lately, I’ve been wrestling in new ways with the role of grace in my life. It won’t come as any real shock to my closest friends, but one of my biggest pitfalls is perfectionism. In some ways, though, this has served me well. I’m a competitive, highly motivated person and I don’t easily take defeat lying down. This is why I’m a debater, it drives me to survive at college, and it makes it easier to meet many of the daily challenges associated with living with CP.

But whether this pervasive impulse to have all my I’s dotted and my t’s crossed applies in academics, competition, or my personal life, of course it has a lot of negative implications as well. Take my school work as an example, especially when I was younger. My parents can testify that, in days gone by, I put so much value in my school work that setbacks in this area would put me in a serious emotional tizzy. More than just pleasing my parents and teachers, this caused me so much distress because I tied up something more important with it: the idea that I had something to prove. At far too many turns in my life, I’ve been desperate to get people’s attention by achieving overwhelmingly impressive success. To my mind, since I had external imperfections that I feared people would be unable to look past, I had to convince others I was worthy of their time and respect through my own awe-inspiring achievement. My perfectionism has often flowed out of frustration with my own imperfections.

I’ve discussed similar veins of thought on the blog before, but recently I’ve come to the realization that this attitude often has an even more sinister effect than even the ones I had considered before. In recent months, I’ve been especially frustrated with my shortcomings before God. The times I’ve found myself struggling with sin, falling repeatedly into the same traps, were becoming increasingly sources of anger and frustration. God forgive me, at times I’ve been so upset with myself that I’ve doubted whether He would even accept my repentance. Maybe this time I had pushed him once too far. I found myself struggling with the fact that I never knew exactly the right words to say. Maybe I hadn’t quite checked all the right boxes to make my prayers “count,” what if my heart was never in exactly the right place before God? If my requests for forgiveness weren’t perfectly acceptable, how could I make sure that I had all my I’s dotted and my t’s crossed to make God accept me. I had allowed that insidious perfectionism to creep into my faith and my relationship with my heavenly Father.

This is a relatively recent problem, although I’m beginning to see that, like I pointed out, the roots of it have been around for a long time. I’m still in the midst of figuring this out. But, praise the Lord, He is beginning, as I wrestle with this, to show me just how false this is. It’s true that God calls us to be holy. But without sin and imperfection in our lives, why would God need to offer us grace? It seems to me that my anxiety-causing fixation on a lack of the “perfect” repentance or the “perfect” faith is basically a form of trying to obtain salvation by works. Granted, these works involve trying to achieve the “perfect” faith, but working to make sure I have all the right boxes of faith checked misses the point of faith. Why the cross if God did not long to extend us grace? It is His work, His triumph, that removes our need to check the boxes. This is exactly why the author of Hebrews can call the New Covenant a better covenant. It gives us freedom from anxiety, because God can now, by Christ’s righteousness, cover over the imperfections of our hearts. Christ’s work grants grace, mercy, and the freedom of Christian liberty. Those with disabilities, as well as those who follow Christ, should take comfort from this. Because of grace, not only do we have nothing to prove before others, we have nothing to prove before the God of all grace.

 
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